How This Mom Supports Son Whose Muscles Are Turning to Bone
November 21, 2019
Mothers from around the world came together to support each other as they raise their children who have a rare disease that turns their bodies to solid bone. The condition is called fibrodysplasia ossificans progressiva (FOP). It is believed to affect just one in every 2 million people worldwide, according to the Department of Health and Human Services, and there are only a few hundred known cases. Families gathered in Orlando to spend time with Dr. Fred Kaplan who discovered the FOP gene.