In an emotional meeting people from all over the country suffering from a baffling disease came together. 

The disease is called Morgellons disease and sufferers say it produces strange fibers to emerge from the skin.  

The symptoms are painful and even creepy.

INSIDE EDITION spoke with Nicole and Brian, who both suffer from the disease.  Nicole says that her skin itches.  Brian describes it as a “stinging, biting, crawling” sensation.

Using magnifying devices they comb their bodies, examining what they say are outbreaks of the disease.

Many wonder what causes the mysterious disease.

Most doctors don't recognize it as a disease at all.  They say people who claim they have it are delusional, conjuring up parasites, scratching themselves, and even planting textiles like cotton on themselves to feed the delusion.

Cindy Casey is a registered nurse.  She was terrified when sores and weird fibers appeared on her body.  “When I looked I panicked. I was horrified. I never saw anything like this in my life.”

Brian tells INSIDE EDITION, “I’ve had 17 visits with doctors…all but one has basically laughed at me.”

Nicole says doctors first thought her daughter Ashley had severe diaper rash, until the lesions spread to her face.  “She constantly thinks bugs are on her. That's what it feels like crawling underneath your skin.”

At Oklahoma State University in Tulsa, Dr. Rhonda Casey says she believes Morgellons is a genuine illness and takes precautions when examining Morgellons’ patients.

Dr. Casey says all her patients exhibit the same types of lesions and scars. She says they are definitely not self-inflicted.  She describes them to INSIDE EDITION saying, “They appear to be eruptions rather than scratched areas on their skin.”  She has taken numerous fiber samples and says they're unlike anything she's ever seen.

Amazed by the mysterious fiber on Brian’s hand, she decides to have it tested.  She tugs on it, but the fiber holds firm.  Finally it comes loose, taking some skin with it.

Dr. Casey and her colleague, Dr. Randy Wymore takes the samples to Tulsa’s crime lab.

According to Dr. Wymore, “We only know what they're not made of...Morgellons are not any known textile...cotton, nylon, rayon...not any of those.”

The fibers don't even burn when exposed to high heat.

Many in the medical community are nonetheless skeptical, but people who say they have Morgellons are desperate. The CDC has announced it will investigate the condition.

For more information on Morgellons disease, visit www.thenmo.org.