Girl, 2, Falls More Than 100 Times a Day Due to a Rare Neurological Disorder
By the time little Kate was 18 months old, she couldn't sit without falling over.
This 2-year-old falls more than 100 times a day, but it’s not because she's clumsy.
Little Kate Gulo, of Rosemont, Ill., has been diagnosed with a rare neurological disorder that leaves her with balance and coordination difficulties.
"Before, she was just a normal toddler," her mom Teresa Gulo, 30, said in an interview with SWNS. “She might fall a couple times a day.
Kate learned to walk before her first birthday and loved to run, jump and dance.
But when she was about 18 months old, her parents said she had a hard time even walking in a straight line without falling over. Within five minutes, she could fall about 10 times, often hitting her face on table corners.
“We didn’t feel we could take her anywhere,” Teresa said. “If we had to go to the store we had to put her in a stroller or carry her.”
In addition, she had jittery hands and eyelids, difficulty sleeping and temper tantrums worse than normal.
As time went on, Kate wasn’t able to crawl or sit without toppling over.
“There was a point when we didn’t know how much more downhill her condition could go,” Teresa said. “We started thinking, ‘Will she ever walk again?’”
Her condition deteriorated enough that her parents brought her to the emergency room, and she was eventually diagnosed with opsoclonus myoclonus syndrome, a disorder that affects one-in-one-million people.
Doctors administered a round of chemotherapy and steroids, and as if by miracle, Kate was able to take some first steps just days later.
“Now she is walking and jumping and running, pretty much like a normal 2-year-old,” her parents said. “It feels like the doctors saved her life and ours too.”
Kate now continues chemotherapy and steroid treatment in hopes she does not relapse and attends physical and speech therapy sessions to make sure she continues reaching all her milestones.
Her parents and doctors hope she will soon be treatment-free.
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